Speed dating horror stories
Constant pain, vomiting, weight loss, GI bleeding, the list goes on and on.What 24 year old girl should be living on a diet of baby food and applesauce because she can’t keep anything else down? I didn’t realize it at the time, but I was extremely lucky to have been diagnosed so quickly. And even after we finally get the diagnosis, we are simply told to not eat gluten and are shown the door. These stories need to be heard…and I’m just the guy to do it Let’s raise awareness and at the same time, push the medical community to try and get their sh*t together. Her response, “As long as you take laxatives you’ll be fine.” At that point, I was desperate for anything so I tried the laxatives. In a couple of days, I was sicker than I had ever been. A year and a half ago I began to be concerned over my significant memory loss, severe exhaustion and increase in gastro symptoms. The pain was so bad not even the morphine could stop it – but I didn’t care so much as I was high as a kite. Is it because there’s no drug to cure celiac and so there is no financial incentive for the medical industry? Over the past few years months, you’ve shared doctor horror stories that have absolutely floored me. I asked her what I could do to PREVENT the symptoms I was having. Symptoms continued of course, and I was admitted to hospital emergency in 2011.I tried but kept feeling faint on the treadmill and then, my legs and back went numb.I heard “it’s just menopause”, fibromyalgia, the catch-all “IBS and GERD””…and my favorite, “it’s just stress” because my father had just died.I was diagnosed with interstitial cystitis but only by the questionnaire, not by a chemical test.It seems that my bladder issues only flare up when I am glutened, so I am not sure about whether it’s a celiac symptom or true IC.
And I always felt like I had to convince doctors that my issues were real. In that time I saw 60-70 different doctors, got tested for a ton of stuff (can we say the majority of these were intrusive and uncomfortable, if not downright painful) and had more drugs thrown at me than you can shake a stick at. I first visited the Doctor when I collapsed at work in extreme acute pain (think appendix) when I was about 19 (approx 1996).Another said I needed to “do volunteer work to get my mind off it all.” (I could not even dress myself or tie my shoes)Another encouraged me to work out at a gym.After being tested for celiac about 5 different times and it being negative for some unknown reason it finally came back positive!!
Also they did genetic testing that showed I had genetic mutations that made me prone to celiac.I had difficulty remembering how to cook, balance a checkbook and drive my car, and I suffered insomnia, sores, burning skin, and severe burning neuropathy, numbness, parasthesia and weakness. I asked if it was gluten free (because my son has been glutened before by generic drugs) and she said “oh, I don’t know, I don’t know how you would find that out”. So I refused the drug – the last thing my son needed was severe stomach pain on top of the breathing issues.